In fact, I even find it strange that the Pope's body is on display in Rome. To me, the traditional Catholic view would be that now he is with God, his remains are no longer relevant. On this matter, bizarrely, I seem to be more Catholic than the Vatican. [/quote] Well, what about relics of saints? And rules about who gets buried where? I don't think the Catholic view is that remains are irrelevant at all, just that they are not the person.
Mirren
Apr 6 2005, 09:51 AM
eej, I'm intrigued by your views on organ donation, because I genuinely don't think I've ever had a discussion with someone who wouldn't want their organs used after their death. I've been carrying a donor card since I was about 13 (which reminds me, I must register here in Canada, though since they won't take my blood I'm not sure if they'll want my kidneys).
I really can't understand it; do you think you could explain a little more?
Boliver
Apr 6 2005, 10:04 AM
There are a couple legal things that we all can do to help prevent a Schiavo-like incident from happening to us. One, as y'all have mentioned, is a living will. We use that to say what we do and don't want to happen to our bodies in whatever state.
Another is a health care power of attorney, which names the person who we want to be responsible for making those decisions for us; that person does not have to be family. If Sciavo had had a living will saying she wanted a DNR order, but had, say, her mother as having power of attorney for heath care decisions, the husband would have still ended up in court because, I suspect, the mother wouldn't have followed the living will instructions.
Having both of those things is really important, and I suggest that it's worth the money to go to an attorney and have all this taken care of. Of course, I work for an attorney who does this very kind of work, so I'm biased.
As to my personal opinions on what I want: cremation, no prolonged (years) dependence on feeding or resiratory tubes, all organs up for donation. I'm aghast that America or each state doesn't have an assumption of organ donation, with people able to opt out. We have so many people waiting for organs in order to live, and plenty of organs from people who never bothered to become donors. Doesn't France have a presumption of donation? I really think we should do that.
I'm unsure yet of who Ron and I want to have our HCPoA of we're both near death, but I suspect that for me it would be my dad, who is a doctor and is very medically practical, and who would respect my wishes, or my friend Liza, who I'm hoping can be the executor of our trust if we both die.
My main concern in the Schiavo case isn't at all what the options were- they're both valid. It's the parents not trusting the husband that those were Terri's wishes, and Terri's wishes taking so long to come to fruition. That's MY nightmare.
Pandrea
Apr 6 2005, 11:15 AM
QUOTE Well, what about relics of saints? And rules about who gets buried where? I don't think the Catholic view is that remains are irrelevant at all, just that they are not the person. Yeah, I guess you're right, now that I think about it, but it doesn't actually make sense to me given the other belief about the body being merely a shell. Sometimes I realise that the version of Catholicism I was brought up with is quite an idiosyncratic, practical one, which certainly colours my overall view of religion. If I had been brought up in an evolution-denying (not that the Catholics do), strictly dogmatic, fire-and-brimstone and scary priests church, instead of one where all the priests I came into contact with were lovely, genuinely holy men and Vatican 2's changes were completely accepted, I'm sure I would think differently!
ejg25
Apr 6 2005, 12:02 PM
I'm not against organ donation. I think it's an important thing. But I would not do it (though I would voluntarily donate a kidney or marrow or whatever to save a loved one's life). As Pandrea says, they tend to take the organs while your body is still alive, and I would want to retain the body for my own use. After death, it's again about the integrity of the body. I can't stand the idea of being stripped for parts or even cremated. I realize that funerary practices require some cutting open and/or removal -- even that I'm not so keen on -- but at least the end result is a body that is essentially whole and whole-looking.
The idea of presumptive organ donation and requiring people to opt out is appalling to me... it's a big deal, and each person must have to decide for it his/herself. The government can't automatically dictate the use of a person's body. Not to mention that some have religious dictates concerning the body's treatment after death. The best thing society can do is to raise awareness of organ donation and encourage people to volunteer.
I also see the displaying of the Pope's body as consistent with Catholic tradition. It's in the context of the relics on display... saints' fingers, etc. There's a tendency to venerate the remains or at least believe that there's something to be gained from proximity to them. Pomp, circumstance, and not a little bit of Gothic gore -- that's the Catholic Church of history.
SNeaker
Apr 6 2005, 12:50 PM
eej, did you wake up Jewish this morning? Heh, but seriously, a lot of your views match the Jewish view of these issues, although it's all obviously very complex. QUOTE The idea of presumptive organ donation and requiring people to opt out is appalling to me... it's a big deal, and each person must have to decide for it his/herself. The government can't automatically dictate the use of a person's body. Not to mention that some have religious dictates concerning the body's treatment after death. The best thing society can do is to raise awareness of organ donation and encourage people to volunteer. Word. Thankfully, because I'm religious, I'll never have to worry about a spouse disagreeing with my parents on what to do with me should something happen, G-d forbid. I want whatever Jewish law dictates should happen. I am looking into an organization called the "Halachic Organ Donor Society" which has cards that you can check for some of your organs to be donated after either cessation of brain-stem activity, or cessation of heartbeat. I have to speak to my Rabbi about it.
ejg25
Apr 6 2005, 12:58 PM
| QUOTE (SNeaker @ Today at 10:50 am) | eej, did you wake up Jewish this morning? [/quote] So that's what that bagel was doing under my pillow...
mjforty
Apr 6 2005, 02:35 PM
QUOTE In fact, I even find it strange that the Pope's body is on display in Rome. To me, the traditional Catholic view would be that now he is with God, his remains are no longer relevant. On this matter, bizarrely, I seem to be more Catholic than the Vatican. I heard some commentary that might help you better understand this. Apparently, the entire process of burying a Pope is designed to reinforce in the followers' minds that the Pope has died. From what I understand, the long laying out period is so people can see the Pope deteriorate with their own eyes. Once all the ritual of burying the Pope is finished, it will have been reinforced over and over again, in various ways, that the Pope has moved on. The visualization of this is deemed very necessary, hence the laying out of the body for a week. This ritual has been designed so that, by the end of it, Catholics will have grieved enough for the dead Pope and will be more willing to accept a new Pope. As for the question at hand, I'm with eej (again). I want to be kept alive. Yes, it probably is selfish but hey, that's who I am and the people who love me know that.
jenelope
Apr 6 2005, 03:22 PM
Actually, all Roman Catholic funerals require the body to be present for all aspects of the funeral. Typically, there's a vigil the day and evening before the funeral (often with a Rosary prayed in the evening), then the next day there is a funeral Mass at the church before proceeding to the cemetary for more prayers and burial. If the deceased is to be cremated, it takes place after the funeral Mass. There are special guidelines (and approval required) if cremation occurs before the funeral Mass. After cremation, the ashes are supposed to be buried or entombed. Because more and more Catholics are choosing to be cremated, some Roman Catholic churches and cemetaries are building columbariums for ashes.
The Pope's body being on display isn't really that different from any other Catholic funeral. He's just being displayed for a longer time. And being seen by a lot more people.
NatCat
Apr 6 2005, 05:33 PM
It's very interseting to read other peoples thoughts on what is such a personal matter.
Death doesn't scare me, but the idea of existing in some sort of non-responsive vegetative state just terrifies me. I would much rather have someone flick the switch and donate my organs in order to give someone else a better chance at life.
I had a talk with my parents about this and we're all of the same mind, however my sister doesn't agree. Should anything happen to my parents I would hate to battle the issue out with her.
Does a living will have to be drawn up by an attorney?
Ambrose's Auntie
Apr 6 2005, 06:09 PM
NatCat, there's a fair bit of information on the position in Australia here. I have a potentially fatal genetic illness, and I've made my views very, very clear to my parents: I don't want to be kept alive in a vegetative state, if it comes to that. I've given this an enormous amount of thought over the past few years, and again more recently since my illness is active again. I'll fight like a wildcat to stay alive and functional and cognitive, but if alive is nothing more than a blank existence, I don't want it. I have my driver's license marked for organ donation, but I doubt they'd want too many of mine given their state. But I'm happy to pass over what can be used.
Vanishing Point
Apr 6 2005, 07:21 PM
I find it very interesting the different views expressed in this thread as well. They tend to be rather polar - "keep me going, I ain't finished yet" or "switch me off, I'm done for". Though I guess there isn't really much of a middle ground to choose from in this case.
I wonder about what causes people to have the different views. Is it cultural? Spritiual? What?
I don't really believe it has much to do with how selfish we might or might not be. There is somewhat more to it than that.
In Sneaker's case the answer seems relatively clear, she is following the dictates of her religion. Is religious background a factor in our decision, regardless of whether we are religious now?
I'm really not sure.
Personally, I am staunchly atheist and do not recall a time that I ever believed in a divine being. This is despite the fact that when I was young I attended church services with my parents (Uniting Church) and attended Sunday school. I do not believe in seperation of body and soul - souls cannot transmigrate in any of the forms that different religions propose, whether it be ascension to a higher plane of existence, heaven, hell or rebirth into another body. You would think that this view would make me more likely to want to cling to this life with every fibre of my being - it's the only life of any form that I've got. And despite the fact that I don't believe in separation of body and soul I do believe it's possible to be dead and for the body to be kept "alive". I confuse even myself.
Does religion ever make people lean towards the side of "turn me off"?
Perhaps religion has nothing to do with it for many people. Does a more positive or negative outlook on life influence the decision. Do people who are more optimistic or pessimistic by nature lean in certain directions. Optimists leaning towards "keep me going", pessimists towards "turn me off".
I guess there must be a mutitude of factors and in many cases none is definitively determining.
Mirren
Apr 6 2005, 07:48 PM
I still don't think I get it, eej, and I doubt that I will. I can understand that some people's religious belief prevents them from donating their organs (for example if they believe in the resurrection of the body (though I'm not sure how decomposition factors into that, but anyway ...)). I don't believe what they believe, but I can understand that their belief system is consistent.
I guess what I don't get is "the integrity of the body", and why it's important to you. My body is always changing - I gain weight, I lose weight, I give blood, I have plastic lenses floating about on my eyeballs, I have a plastic implant pumping out levonorgestrel ... I don't have holes in my ears or ink under my skin, but plenty of people do.
I find it hard to balance a gut feeling (boom, boom) that the body ought to remain intact against the potentially life-saving effects of donation.
On VP's point, I am agnostic but I do consider myself an optimist. I think a lot of my views in this area are coloured by my mother being a doctor, and my having been exposed to a lot of medical information all my life. The woman who gave birth to me has sliced people open and sawn their bones - maybe that makes me feel differently about medical procedures. I'd also basically trust her judgement on when to pull the plug on me - she's a realist.
ejg25
Apr 6 2005, 08:14 PM
FYI, I was using the "wholeness" definition of "integrity."
Just because I'm not religious doesn't mean my beliefs aren't consistent or that I don't have a philosophical/spiritual construct or an equally legitimate right to self-determinism.
Of course I've got no problem with medical procedures or medical science. However, surgeries and the like have the goal of making you better, more whole than you were when you started out, or at least eventually getting there. By contrast, I'm picturing my body in a coffin with no eyes or insides... and I would not want that.
Meowcat
Apr 6 2005, 08:38 PM
I don't know that religion is the answer VP - I'm not conventinaly religious - I believe in something but not in the way that most religons would define it or want to define it.
It seems to me that its more about what point we decide our life has ended to some of us it's when our brains no longer function - that is how we define our selfs. To others it's when the body no longer functions.
Same with organ donation if the body is important to you then the idea of bits not being there is wrong. If you feel that the personality and the mind were what's most important then you don't mind bits being used again.
Mirren
Apr 6 2005, 08:44 PM
I've been thinking about why I'm not understanding what you're saying, eej. I wonder if we have fundamentally different attitudes to our bodies?
For me, my body is a tool. I enjoy it, it occasionally pisses me off, but it's not related to the essence of who I am. (Tied into this, I've never been able to understand what drives transexuals, because if I woke up tomorrow and I was a man I think I'd still feel like me. A taller, deeper-voiced and very surprised me, but me nonetheless.)
I feel that my personality isn't related to my body as a whole, just to electrical impulses in my brain - and once they switch off, my body will be just biological goo. Consequently, what happens to it after I'm dead doesn't bother me.
This distinction between my body and my self is a pretty deep-rooted and fundamental axiom for me - so much so that I've only just properly realised that I have it and that maybe not everybody shares it. I don't think it's related to religious belief as one could easily feel the same way as I do and also believe in the soul.
So I'm not accusing you of inconsistent beliefs but I think that my axiom and your views maybe are inconsistent. Which leads me to suspect that your axiomatic beliefs about the body and the self are possibly different from mine.
I guess I should have taken Philosphophy of the mind rather than Feminist ethics as my subsidiary at uni, then I'd have a more coherent and communicable take on all this.
ETA: Ha! And there Meowcat summed up all my ramblings in two concise sentences.
Boliver
Apr 6 2005, 08:52 PM
I guess Homer Wells' most basic thought in John Irving's Cider House Rules sums up my opinion on organ donation: I just want to be of use.
In terms of burial, I find the idea that my body will continue to take up space on this earth, when my mind isn't here, to be offensive, as if I am imposing my will on a planet that would not want me there. I'm not feeling particularly happy towards humans right now, and find most of us, globally, to not be pushing towards the kind of future I'd want our kids to have; not only is this bitter-making, but it makes me not want to have more of a presence on the earth than I have to. I'm not here any more, when I'm dead, so why should my body be?
I don't find others' desire to be buried to be offensive, though I do tend to think of it as a waste of space, but that waste of space is a small thing compared to following through on what those people would have wanted.
I understand that funerals are for the dead, but they're also a show of how much my loved ones loved me, and if they loved me, they'd show that by respecting my wishes. I deeply respected Nate on Six Feet Under for caring for his wife in this way, and though I assume my remains wouldn't require the same level of, uh, planning and potential legal ramifications, I'd like to think one of my loved ones would consider going that far to make my dead self satisfied.
I now consider myself to be athiest, though for a long time I thought I was agnostic. I generally don't think highly of religion (though I find it fascinating) because I've never seen an instance in someone I know of their religion helping them in a way that self-sufficiency and confidence wouldn't have. I see no proof of God at all, anywhere, and don't think that any one person has a destiny. When our time's up, we're lucky to have had any time at all, though most of us probably didn't contribute all that much to each other globally except for perhaps companionship.
jenelope
Apr 7 2005, 08:06 AM
Ah, my feelings on cremation vs. burial are very simple. I don't want my body to decompose in a box somewhere. The idea that someday I might be all dressed up and put on display in a box for all of my relatives to see doesn't bother me. Funerals are for the living, after all. I know that I won't really be there, so it shouldn't effect me. But the idea of staying in that box and eventually rotting away? No, thanks. If I'm done with the world, why can't the world be done with me? Put me in an oven, then put what's left in a drawer in a cemetary. Preferably, somewhere with a nice tree and a bench nearby, so that if someone does come by, they at least have someplace nice to visit.
Joasia
Apr 7 2005, 08:59 AM
Personally, when it comes to being kept alive artificially, I'd rather be let go. I'd want my loved ones to say their goodbyes but if there really wasn't any hope of me recovering, then why prelong my life/suffering and the pain of those around me.
In regards to organ donation, I would like to think that i would let them be used to help others but I don't think I'd actually do it. As it stands at present, I'm not a donor and that's my mother's influence. She's a doctor and a very opinionated one on this issue and when i was younger and didnt know much, she advised me to not be a donor. Her argument is that she's seen how organs are removed and what's left and it's not a dignified way to be, cut up etc with parts missing. I agree with her in some respects but not all. Like I said earlier, i like the idea of donating but the thought of not being physically whole makes me hesitant and doubtful i'd do it, unless it was for someone in my family.
I consider myself to be a Catholic, at least i was brought up as one and tend to believe the whole having a soul thing and death not being the end and going to heaven etc....or at least, somewhere....just dying and my body rotting away at that being the end of it all doesn't sit comfortably with me for some reason, i'd just like to think there's more to life and death than just that. it's just so clinical and scientific....for me this is just a faith thing. I'm not sure whether it really will happen the way i believe and i respect other pov's.
Funeral wise, I'd probably want a religious one.Whether i am buried or cremated doesn't bother me as long as there is a place my family can visit (even if it's not a cemetary) to be close to me.
Seeing as I'm still pretty young, i have no doubt that in 10 yrs my opinions could be vastly different but for the moment they are as they are.
Claudia
Apr 7 2005, 11:35 AM
| QUOTE (Joasia @ Today at 9:59 am) | In regards to organ donation, I would like to think that i would let them be used to help others but I don't think I'd actually do it. As it stands at present, I'm not a donor and that's my mother's influence. She's a doctor and a very opinionated one on this issue and when i was younger and didnt know much, she advised me to not be a donor. Her argument is that she's seen how organs are removed and what's left and it's not a dignified way to be, cut up etc with parts missing. I agree with her in some respects but not all. Like I said earlier, i like the idea of donating but the thought of not being physically whole makes me hesitant and doubtful i'd do it, unless it was for someone in my family. [/quote] I'm surprised at the strength of my reaction, but I think I'm offended that a doctor would say that.
There's enormous dignity in giving life and health to another human being. The details of how that is done is as less than nothing to me. There's plenty of nursing care that isn't dignified, but it's necessary, valuable and honorable work.
I don't care about open-casket funerals or the wholeness of a corpse and I don't think my family would either at the cost of not saving someone else's life.
As far as spiritual beliefs, I'm with VP. This is all that there is, and that makes life all the *more* valuable, not less. The meaning in life is what we find and make of it, and how we help others. Heaven, reincarnation, any existence beyond this life, it's all "It's pretty to think so," to me.
Pandrea
Apr 7 2005, 12:05 PM
My main feelings about burial is that I hate the idea of a beautiful wooden coffin, which costs a fortune, being completely wasted by mouldering away in the ground. Especially if it's mahoganay or some other endangered wood! The cardboard coffins are cool, I could go with that and I kind of like the idea of my body being merged with the earth. However, I guess I see that it's more sensible not to keep burying people and I also like the idea of ashes being scattered in some special place. Since I never go to cemetaries to remember people, I wouldn't expect anyone to go to my grave/cremation urn site, but I would very much like a bench in my favourite park with a plaque on it. However, really I don't mind, because once I'm gone, people can do what they like. The world will go on without me in many ways, why bother trying to control this one aspect of it? Obviously I want everyone to remember me though ...
mjforty
Apr 7 2005, 07:07 PM
I'll remember you, Pan. Of course, I'll probably go before you since you're younger so I'm not sure how much help I've been.
Cremation, with my ashes scattered. I hadn't actually made that decision until my grandparents died. They are buried next to each other and I realized, after visiting their gravesite, that after my generation dies (my grandparents' grandchildren), no one is going to visit their grave. It all seemed like such a waste of money after that realization. My mother was cremated and she wanted us to divide her ashes up between her children and each of us was to dispose of her ashes in whatever way we wanted. While it was a bit morbid to divide the ashes (my oldest sister had to do it, with me sitting there tormenting her with "Don't sneeze. Don't sneeze. Don't sneeze." and I was initially appalled by the idea when my mother first mentioned it, after listening to my siblings stories of what they did with the ashes, I ended up liking the idea. We each found a place that was special to us or to my mother and had our own little going away ceremony. It helped the mourning process along.
For VP: I'm an atheist. This is it as far as I'm concerned. No non-corporeal parts of my floating off somewhere. I was raised Catholic but must admit that it never really took. I was always questioning the doctrine during Cathecism.
jenelope
Apr 8 2005, 08:41 AM
I read a post on another message board about a woman whose mother had always wanted to travel, so the daughter has been taking some of her mother's ashes with her and scattering them as she travels. I thought that was very sweet.
There was an article in Self magazine this month on organ donation. It compared two patients on the liver transplant list, one who waited for four years on the UNOS list, and one who sought out private donation and received his liver in four weeks. There were some interesting facts in there. In 2003, 25,461 people received transplanted organs. That same year, 7010 people died before they could receive a transplanted organ. Every day, four people are removed from the list because their illness has progressed to the point where they're no longer a viable candidate. Less than half of people approached about organ donation consent. The number of people donating does increase every year, but not at even close to the rate that people are being added to the list. All of those facts have strengthened my belief that if I do it, it will most likely save someone's life, and if I don't do it, someone will probably die. I view checking off that box on my license as one of the most important things I do.
Having said all that, I do understand why someone wouldn't do it. It all comes down to the point when you believe that it's possible for your life to be saved. Since the transplant team has to maintain some kind of life support to keep the organs viable, brain dead may not be dead enough for some people to accept the procedure. I don't agree with it, but I get it.
Boliver
Apr 8 2005, 09:30 AM
The most important thing for me on that issus is that everyone make their wishes known one way or the other. While I respect people who choose to NOT donate, there are many, many people out there who are simply too lazy to decide or care about if they decide. That's the part that gets me: laziness or apathy killing other people who could be saved.
Ginni
Sep 6 2005, 01:46 PM
Huh. This is a very interesting topic to me, since my father was the first ever organ donor on the small island in which he died. Up until the previous year it had been illegal, and once we knew that he was brain-stem dead, I ordered my mum to get the organ transplant team involved. In fact, it was so new to them that she had to ask them if he could donate, and they had to fly a team of doctors over from Liverpool to perform the surgery.
My father's (and hence my) theory on things were that your body was just an overcoat that stored your soul, and once that's moved on to whereever you believe it moves (or dies), there's no point in throwing away a perfectly good overcoat.
I used to be a little squeamish about my eyes, and for a while didn't have that on the list of things they could take, but hell - it's not like they carve you up and leave gaping wounds. They do take a bit of care.
Anyway - there was a special episode of Casualty (the Beeb's version of ER) all about organ doning recently, and I was making Fiona totally aware that if it all goes Pete Tong for me, I want as much taken as possible. The letter that my mum got from the organ donor society (or whomever they were) made a HUGE difference. 4 people got to live/see through my dad's death.
I get that folk don't wish to do it for religious reasons, but I do struggle to step off my soap box. I'm all about the switch me off, carve me open, take what you want. It's not me - it's the thing that used to house me, that's all.
Heatherbelle
Sep 6 2005, 02:35 PM
You know, I thought I'd posted in this topic, and I obviously haven't!
My take on it is very similar to Ginni. Except she's phrased it far better than I could have.
My parents both know that if I was to become brain-dead, then I would want my organs to be donated. All of them. It's not like I'd be able to use them anymore. I'm not particuarly religious, but I take the view that no good diety is going to frown on you giving away the means for others to continue with their lives!
The BBC have been doing a whole set of programmes around this theme, and it prompted the latest of many discussions with mum and dad. Both also wish to donate, although mum says "everything but the eyes!" It's also noted on my driving license.
It's an important topic for me, but for the opposite reason to Ginni - as a first year at Uni, one of my close friends was suddenly taken very ill, and required a heart transplant. Luckily for her, the illness was so quick that every thing else was still healthy, meaning she was an extremely viable patient and went to the top of the list.
She was lucky enough to receive an new heart within about two days, but I will never forget that horrible wait. And despite the fact I now longer speak to girl in question (she turned out to be a bit of a cow!) I'll always be grateful to that family that made the descion to donate their loved one's organs.
The thought that I could help others in that situation brings a sense of comfort to me, and I'd like to think would be a source of comfort to my loved ones.
Ginni
Jan 24 2006, 09:46 AM
Further to this discussion, a guy at work has an invalid grandmother who is near the deedy-hole. She's seriously alzheimered, and has had several falls over the last few months. She had her last fall just before Christmas, and had a new hip put in on Christmas day. Her recovery has been hampered by her dementia, and as a result, she's now got wound infections, and is not doing too well. I've just asked how she is, and it would seem that the medics have removed foods, and are ceasing liquids today. I think he's quite happy with that, but it just struck me as a remarkable difference to the Schiavo situation. And then I've just read this on the Beeb: A doctor who's gone to Switzerland to die. Fee and I have just done our wills, and we're about to get power of Attornies done too - I don't want no feeding tube.
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